Implementing a regional platform for PROMs and PREMs in cancer care in South East Scotland
There is good evidence that the care of cancer patients can be improved by asking them to report on their health using validated questionnaires. Patient reported outcome measures (PROMs) are questionnaires patients complete on their health and quality of life. Patient reported experience measures (PREMs) measure allow patients to feedback on the service they receive. The information collected from PROMs can help to monitor patient progress, help professionals and patients discuss health issues with each other and help to improve the quality of health services.
The South East Scotland Cancer Network (SCAN) and the Edinburgh Cancer Centre (ECC) are working with the digital technology company My Clinical Outcomes (MCO) to implement the use of PROMs in routine care. Initial pilots are likely to take place in specific groups of patients:
- After surgery for early bladder cancer
- After radiotherapy for lung cancer
- Following a diagnosis of ‘cancer of unknown primary’
- During treatment for breast cancer
- After surgery for cancer which has spread to the liver
- After radiotherapy for pelvic cancer
Information that patients record using PROMs will be available to the clinical teams to assist in treatment or to advise patients on how to manage their condition. The SCAN Health Boards will also be able to use PROMs to assess how patients are affected by their cancer and by the services that are provided to care for them.
The SCAN Cancer PROMs pilot aims to align with other similar initiatives in Scotland to provide a comprehensive PROMs service to enable national comparisons of the outcome from treatment. The ultimate goal is joined-up patient-centred care for all cancer patients that is fit for purpose in the new digital healthcare era.